F1PTCyVogsRmIhYc5DmWUco5hEc Kristy's Story...My Husband Has Brain Cancer

Sunday, January 29, 2012

Kristy's Story...More Twists and Turns in Our Life

Well, where do I start? I know we have a month of catching up since I last posted. I have had so much going on it is very hard to breathe much less write a story. Besides the brain cancer treatments we have some family issues that have changed our life, we hope temporarily. So I think that is where I will start.

It started mid December, one week before Christmas, with a phone call from Child Protective Services. They wanted us to take in three kids that were being removed from Michael's sister. She has six kids, three girls and three boys, and wanted us to take the girls. I won't go into the whys right now because this issue is still being looked into. Any way we ended up taking in the three girls. The ages are 16, 12, and 11. The 16 year old gave us so much trouble and attitude we had to request she move in with her grandma, Michael's mom, along with the three boys. But the other two girls are still with us. Needless to say we now have two more mouths to feed, clothe, get to school and back. homework, and the list goes on. Our time is pressed to the max.

Now to Michael. He has had a rough time the past month. The chemotherapy has finally hit him pretty hard. His blood platelets are low and making him very tired. My "never sit down husband" has had days where he just doesn't want to do anything. He just did a new blood work-up to tell us what needs to change to help him. They are talking of spacing out the days he takes the chemo instead of doing the doses in five days every few weeks.

Within the last couple weeks Michael's face has become numb and he mentioned this to his doctor Friday. The doctor is concerned and wants to do his MRI now instead of waiting another three weeks. He says the numbness is a sign the tumor could be growing again. The new MRI is scheduled for this Thursday, February 2nd. I will inform you of the results when we get them.

Lastly we heard about a new vaccine that is claiming to cure cancer!!! The story aired on TV stating Roswell Hospital in Buffalo, NY is choosing 18 to 20 people, I know not very many, to get the vaccine. I was the first one to get through to the phone number when lines opened and signed Michael up. They took some information from me and have emailed me a couple times since. They are to call me Monday for more medical information. Roswell received over a thousand calls in the first couple hours.

Enough for now. I will let you know the MRI results and if Michael gets chosen to receive the vaccine.

Thursday, December 29, 2011

Kristy's Story...Another Round of Chemotherapy

Sorry we haven't been posting much lately. It has been hard to find time with the holidays and as a mail carrier during Christmas my hours working have been long.

Michael is going fine now that we know the tumor has stopped growing for now. It was really scary for a month not knowing if the radiation stopped it. The first time he had radiation the tumor stopped for a year. We now know that if it decides to start growing again it will come back quick. He has another MRI in six weeks and will continue to get them every eight weeks.

Michael goes tomorrow for another Avastin treatment then starts another round of Temadol chemotherapy pills. This schedule of Avastin will continue as long as the tumor does not start to grow.

Thanks for everyone's support and we hope you all have a very happy new year.

Tuesday, December 13, 2011

Kristy's Story...Good News On New MRI

Kristy and Michael have just called me from Duke Hospital. Michael had his MRI early today and then they met with Dr. Friedman to go over the results. Finally some good news, the tumor has shrank some. They cannot tell if the tumor is still alive or if it is dead cells unless they do a biopsy. Doctor Friedman does not want to do a biopsy yet, he wants more time to watch it first. Michael is to continue on the Temadol chemotherapy and the Avastin treatments then do another MRI in eight weeks.

I want to give a special thank you to my friend Debbie. If she had not been able to get us hooked up with a radiologist so quickly we may have had a different result today. With Debbie's help and the quick actions of Eric and Dr. Mansur of Washington University, may have saved Michaels' life. A million thank yous to Debbie!

Monday, December 12, 2011

Kristy's Story...Back at Duke Hospital

Michael and Kristy have safely arrived in Durham N. Carolina. They will go to Duke Hospital tomorrow, Nov. 13th, for Michaels' MRI then meet with doctors to discuss the results. This will be the first MRI since his radiation. Michael feels it has stopped growing for now so let's all hope he is right. He is usually pretty good at knowing when something is different with the tumors growth. We all hope they are told it is shrinking, or better yet, gone.

I will let you know the results tomorrow evening.

Pam

Sunday, December 4, 2011

Kristy's Story...Big Thank You To Friends and Family

THANK YOU TO EVERYONE WHO CAME OUT LAST NIGHT TO SUPPORT SHANE THOMAS & HIS FAMILY.  It was a great time and WE raised $6,296 thanks to every one of you!  100% of this money will go towards his medical expenses and travel costs back and forth to Duke University in North Carolina.  On December 13th Shane gets an MRI to see if the Gamma Knife treatments and the chemotherapy he is currently on is shrinking the tumor.  We need a miracle to heal him of this brain cancer so all of your thoughts and prayers are still very much needed. Please think of this family often, and check the blog http://kristysstory.blogspot.com for further updates.  THANK YOU AGAIN!   Maybe we can re-do this night sometime in the spring...   
 
Thank you,
 
Stacey

Thursday, December 1, 2011

Kristy's Story...Michael Is Doing His Second Round of Chemo

Monday Michael went back to the Siteman Cancer Center for his second intravenous Avastin treatment. Things went well this time, everyone was on schedule so it didn't take as long this time. He has also started his second round of chemo pills, Temadol. He started them Tuesday and will take six pills a day for five days again. Last time they made him sick so let's all hope he is better this time.

I would like to thank everyone that has made a donation through this blog. I can't tell you how much it has helped us. Here is a huge thank you to Max and Judy, Debbie, Dennis, Steve, Kristina, Frank, Peggy, Laura, Tom and Amanda, and Kim. We hope to see all of you at the benefit Saturday night. For more information on the benefit please click on Benefit in the menu. Thank you, Kristy

Monday, November 28, 2011

Kristy's Story...Benefit Reminder, This Saturday

Just a reminder that this Saturday, December 3rd, is the benefit for Shane Thomas and his family.  It is being held at Durham Park in House Springs, approximately 1/2 mile from Highway 30 on Carol Park Road.  (flyer attached)  You can call me on my cell phone 314-852-8025 if you need further directions!

We'll have two 50/50 Raffles, Silent Auction Items to bid on, Gift Card Lottery, Cake Walks, and Live Music from my husband's band "UNLEADED" from 7pm-12.  Please come out and support this family!  I'm hoping to sell the place out! Forward this email on to all of your address book contacts!        
 
Thank you,
 
Stacey  (Kristy's sister)

PS - If you are unable to attend but would still like to make a donation to the family, you can do so at http://kristysstory.blogspot.com.   THANK YOU!